Description
Patients with Gaucher Disease need knowledgeable advocates. This project aims to train patient navigators to fill this crucial role. The Gaucher Disease Support Network trains and supports patient advocates. Dr. Robert Garcia, a specialist in patient advocacy, leads this project.
Objectives
Train patient navigators for Gaucher Disease
- Develop training curriculum
- Conduct training sessions
- Evaluate training outcomes
Project scope
- Curriculum development
- Training sessions
- Outcome evaluation
- Long-term support programs
Method
- Research Methods:Curriculum development and training evaluation
- Patient Engagement:Feedback from trained navigators
- Data Collection & Analysis:Training assessment and participant feedback
Metrics
Effective training and positive feedback
- Number of trained navigators
- Participant satisfaction
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About
Author
Damon Keebler
Enzyme replacement
Basic science
Started Mon Jan 01 2024
Deadline Tue Dec 31 2024