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Innovative Support Services for Phenylketonuria (PKU)

Examples

A project to create innovative support services for patients with Phenylketonuria (PKU), involving collaboration between patient groups and healthcare providers.

Description

Patients with PKU require comprehensive support services. This project aims to fill the gaps in existing support mechanisms. The PKU Support Group provides resources and advocacy for patients with PKU. Dr. Emily Davis, a healthcare provider specializing in metabolic disorders, leads this initiative. 

Objectives

Develop comprehensive support services for PKU patients
  • Needs assessment
  • Service development
  • Implementation and evaluation

Project scope

  • Needs assessment
  • Service development
  • Pilot implementation
  • Nationwide rollout

Method

  • Research Methods:Surveys and focus groups
  • Patient Engagement:Patient advisory board consultations
  • Data Collection & Analysis:Survey analysis and feedback review

Metrics

Positive feedback from pilot participants
  • Participation rates
  • Service satisfaction scores

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