Description
Advocacy is key for Spinal Muscular Atrophy patients. This project aims to strengthen advocacy through collaboration. The Spinal Muscular Atrophy Association supports advocacy efforts for Spinal Muscular Atrophy patients. Dr. Patrick Allen, a specialist in rare disease advocacy, leads this project.
Objectives
Strengthen advocacy for Spinal Muscular Atrophy
- Develop advocacy strategies
- Collaborate with researchers
- Implement advocacy campaigns
Project scope
- Advocacy strategy development
- Research collaboration
- Campaign implementation
- Long-term advocacy program maintenance
Method
- Research Methods:Surveys and focus groups
- Patient Engagement:Involvement in advocacy planning
- Data Collection & Analysis:Survey analysis and feedback review
Metrics
Increased advocacy and collaboration
- Participation rates
- Campaign reach
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About
Author
Damon Keebler
Advocacy
Collaboration
Started Wed May 01 2024
Deadline Tue Dec 31 2024