Dr. Jennifer Smith
Dr. Jennifer Smith is an expert in patient-centered research at the Rare Disease Research Center, focusing on Duchenne Muscular Dystrophy. She leads projects to enhance patient participation in research, develop participation guidelines, recruit patient participants, and conduct patient-centered research activities. Dr. Smith's work emphasizes the importance of including patients' perspectives in research, ensuring that studies are relevant and beneficial to those affected by Duchenne Muscular Dystrophy. Her collaborative approach involves working closely with patient advocacy groups and families to identify research priorities and design studies that address their needs. Dr. Smith's dedication to patient engagement has transformed the research landscape for Duchenne Muscular Dystrophy, fostering a more inclusive and impactful approach to scientific inquiry.
Years active
Publications
PAG collaborations
Publications
A framework for integrating patient perspectives into research on neuromuscular disorders.
Strategies for enhancing patient participation in research on Duchenne Muscular Dystrophy.
The benefits of collaborative research approaches in the study of rare diseases.