RareSearch logo

Patient-Focused Research Participation for Duchenne Muscular Dystrophy

Examples

This project aims to involve patients directly in research activities for Duchenne Muscular Dystrophy, ensuring their voices are heard in the research process.

Patient group team members

Emma Brown Avatar

Emma Brown

Patient Advocate
David Smith Avatar

David Smith

Support Specialist

Research group team members

Dr. Robert Green Avatar

Dr. Robert Green

Digital Health Expert

Dr. Robert Green is a digital health expert at the Digital Health Research Center, leading an initiative to develop digital resources for patients with Cystic Fibrosis. His work includes creating a comprehensive resource website, developing an informational app, and conducting usability testing to improve access to information and support for Cystic Fibrosis patients. Dr. Green's innovative use of technology aims to bridge the gap between patients and healthcare providers, facilitating better management of chronic conditions. His dedication to user-centered design ensures that the digital tools he develops are both effective and easy to use. Dr. Green's research interests include the application of digital health technologies in chronic disease management, and he has published extensively on the subject. His work has transformed the way patients with Cystic Fibrosis access information and manage their health, making a significant impact on patient care.