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Patient-Focused Research Participation for Duchenne Muscular Dystrophy

Examples

This project aims to involve patients directly in research activities for Duchenne Muscular Dystrophy, ensuring their voices are heard in the research process.

Patient group team members

Emma Brown Avatar

Emma Brown

Patient Advocate
David Smith Avatar

David Smith

Support Specialist

Research group team members

Dr. Emily Davis Avatar

Dr. Emily Davis

Healthcare Provider

Dr. Emily Davis is a healthcare provider specializing in metabolic disorders at the Metabolic Disorders Institute. She leads initiatives to create innovative support services for patients with Phenylketonuria (PKU). Dr. Davis's work includes needs assessment, service development, and implementation of comprehensive support programs for PKU patients. Her holistic approach integrates medical treatment with nutritional guidance and psychological support, recognizing the multifaceted needs of patients with PKU. Dr. Davis is an advocate for patient-centered care, working closely with families to develop personalized care plans that improve quality of life. Her dedication to patient education and empowerment has made her a trusted figure in the PKU community. Dr. Davis's contributions extend beyond clinical practice, as she actively participates in research efforts to explore new therapeutic strategies and improve patient outcomes.