RareSearch logo

Patient-Focused Research Participation for Duchenne Muscular Dystrophy

Examples

This project aims to involve patients directly in research activities for Duchenne Muscular Dystrophy, ensuring their voices are heard in the research process.

Patient group team members

Emma Brown Avatar

Emma Brown

Patient Advocate
David Smith Avatar

David Smith

Support Specialist

Research group team members

Dr. Robert Garcia Avatar

Dr. Robert Garcia

Specialist in Patient Advocacy

Dr. Robert Garcia is a specialist in patient advocacy at the Patient Advocacy Institute, leading a project to train patient navigators and advocates for Gaucher Disease. His work includes developing training curricula, conducting training sessions, and evaluating training outcomes to support individuals with Gaucher Disease. Dr. Garcia's approach emphasizes the importance of empowering patients and their families through education and advocacy. He collaborates with healthcare providers and patient organizations to create comprehensive training programs that address the unique needs of Gaucher Disease patients. Dr. Garcia's dedication to patient advocacy has led to the development of innovative support structures that enhance patient care and improve outcomes. His work is a testament to the power of advocacy in transforming the lives of patients with rare genetic disorders.